Youth and parent perceptions of participating in specialized multidisciplinary pain rehabilitation options: A qualitative timeline effect analysis

Karen Hurtubise, Astrid Brousselle, Melanie Noel, Abbie Jordan, Jo White, Nivez Rasic, Chantal Camden

Research output: Contribution to journalArticlepeer-review

Abstract

Background: Little is known about the specialized treatment journeys of youth with pain-related disability and their parents.
Aims: Describe and compare the treatment effects and outcomes as perceived by youth and their parents enrolled in intensive interdisciplinary pain treatment (IIPT) or multimodal treatment (MMT).
Methods: Eleven IIPT youth and five parents and three MMT youth and five parents were recruited. All were asked to complete a treatment journey timeline, followed by separately conducted semi-structured interviews. Transcribed interviews were analysed using reflective thematic analysis.
Results: The main themes spanned the treatment trajectory. All participants described similar initial struggles (Theme 1). Positive and negative treatment effects associated with the acquisitions and disruptions (Theme 2), and outcomes related to supports and realities post-discharge (Theme 3) emerged. Knowledge, skills and support acquisition during treatment and feeling empowered and confident to self-managed post-discharge were identified as IIPT benefits. However, the change effort and life disruptions required, and the difficulty transitioning to real life post-program were acknowledged as detrimental IIPT impacts. Continuing with life as usual, and maintaining supports in daily contexts (e.g., school personnel, friends) were reported MMT benefits. However, the challenges of managing pain, treatment adherence within the competing demands of daily realities, and the lack of support to integrate strategies were emphasized as detrimental MMT impacts.
Conclusions: Detailed impacts of two specialized multidisciplinary pain rehabilitation interventions on the lives of youth with pain-related disability and their parents were described. The treatments benefits and previously unexplored detrimental effects were unveiled.
Original languageEnglish
Pages (from-to)1-21
Number of pages21
JournalCanadian Journal of Pain
Volume5
Issue number1
Early online date3 Feb 2021
DOIs
Publication statusPublished - 2021

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