“Ur skin is the thing that everyone sees and you cant change it!”: Exploring the appearance-related concerns of young people with psoriasis

Fiona E Fox, Nichola Rumsey, Marianne Morris

Research output: Contribution to journalArticle

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Abstract

Purpose: The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discussions between adolescents with psoriasis in order to rapidly identify themes about their support needs.

Methods: Three online focus groups were hosted in a real time forum. In total, 8 young people aged 11–18 years were recruited through the websites of psoriasis support organizations. Focus groups lasted an average of 1 hour and data was analysed using grounded theory techniques.

Results: Appearance-related concerns are central to the experiences of young people with psoriasis. Participants constructed their individual struggle (It and Me) in physical, emotional, motivational and intellectual terms. A strong sense of Us developed as participants recognized the value of meeting peers with psoriasis. This enabled groups to blame Them for their negative social experiences.

Discussion: The findings are discussed in the context of literature around adolescence and appearance. It is suggested that the experience of negative social encounters in adolescence may have long-term implications for appearance anxiety specifically and self-esteem generally. The potential of peer support to improve these outcomes is considered.

LanguageEnglish
Pages133-141
Number of pages9
JournalDevelopmental Neurorehabilitation
Volume10
Issue number2
DOIs
StatusPublished - 2007

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Psoriasis
Skin
Focus Groups
Self Concept
Anxiety
Research
Grounded Theory

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“Ur skin is the thing that everyone sees and you cant change it!”: Exploring the appearance-related concerns of young people with psoriasis. / Fox, Fiona E; Rumsey, Nichola; Morris, Marianne.

In: Developmental Neurorehabilitation, Vol. 10, No. 2, 2007, p. 133-141.

Research output: Contribution to journalArticle

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