Projects per year
Abstract
This paper reports on the first systematic review of literature associated with participatory research involving people identified with sensory impairments and/or intellectual impairments. It was initiated as part of ARCHES, an European Union-funded heritage project. The review sought to examine processes and activities used for organising participatory research involving people identified with sensory and/or intellectual impairments. 54 papers were included, involving studies from 14 countries and varying numbers of participants across different time scales. Insights were gained into use of advisory groups, organisation and support, collecting and analysing data, sharing findings and activity types. Emergent themes enabled an identification of the while of participation. The while represents the tensions, outcomes and component parts which are evident within the multiple moments that span an experience of participatory research. Participation is not about types of activity but how any activity is undertaken.
Original language | English |
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Pages (from-to) | 1031-1057 |
Number of pages | 27 |
Journal | Disability & Society |
Volume | 35 |
Issue number | 7 |
Early online date | 18 Oct 2019 |
DOIs | |
Publication status | Published - 31 Dec 2020 |
Bibliographical note
Funding Information:This article reports on a systematic study of participatory research practice involving people identified with sensory impairments and/or intellectual impairments. This review was undertaken as part of ARCHES, an access to Heritage project funded by Horizon 2020. ARCHES involved research groups that included participants who have a diverse range of access preferences. These preferences are frequently associated with the labels of sensory impairments and intellectual impairments. At the outset of the project a broad label was proposed, “people who experience differences and difficulties associated with perception, memory, cognition and communication”; not all the ARCHES participants wished to be defined by this or any other label however. There was a collective agreement early in the project that it would be far more useful in an access to Heritage project to refer to our access preferences. Our use of the deficit labels within this paper exemplifies the manner in which our commitment to voice is compromised when we move into another arena, as does the inaccessibility of some of language in this paper.
Funding Information:
The project leading to this application has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No. 693229.
Keywords
- Participatory research
- ARCHES
- systematic review
- research processes
- participatory activities
ASJC Scopus subject areas
- Health(social science)
- General Social Sciences
- General Health Professions
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- 2 Finished
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Dr Simon Hayhoe - Accessible Resources for Cultural Heritage EcoSystems
Hayhoe, S. (PI)
1/10/16 → 30/09/19
Project: EU Commission
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ARCHES: ARCHES: Accessible Resources for Cultural Heritage EcoSystems - This project has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement Nº 693229
Hayhoe, S. (CoI)
1/10/16 → 30/09/19
Project: EU Commission