The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula

Usha Krishnan, Michael W. Dumont, Hayley Slater, Benjamin D. Gold, David Seguy, Mikael Bouin, Rene Wijnen, Luigi Dall’Oglio, Mario Costantini, Anastassios C. Koumbourlis, Thomas A. Kovesi, Michael J. Rutter, Marlene Soma, Jessica Menzies, Audrey Van Malleghem, Nathalie Rommel, Michaela Dellenmark-Blom, Vuokko Wallace, Evelyn Culnane, Graham SlaterFrederic Gottrand, Christophe Faure

Research output: Contribution to journalReview articlepeer-review

3 Citations (SciVal)
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Abstract

Oesophageal atresia–tracheoesophageal fistula (EA-TEF) is a common congenital digestive disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life issues in childhood, adolescence and adulthood. Although consensus guidelines exist for the management of gastrointestinal, nutritional, surgical and respiratory problems in childhood, a systematic approach to the care of these patients in adolescence, during transition to adulthood and in adulthood is currently lacking. The Transition Working Group of the International Network on Oesophageal Atresia (INoEA) was charged with the task of developing uniform evidence-based guidelines for the management of complications through the transition from adolescence into adulthood. Forty-two questions addressing the diagnosis, treatment and prognosis of gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life complications that patients with EA-TEF face during adolescence and after the transition to adulthood were formulated. A systematic literature search was performed based on which recommendations were made. All recommendations were discussed and finalized during consensus meetings, and the group members voted on each recommendation. Expert opinion was used when no randomized controlled trials were available to support the recommendation. The list of the 42 statements, all based on expert opinion, was voted on and agreed upon.

Original languageEnglish
Pages (from-to)735-755
Number of pages21
JournalNature Reviews Gastroenterology and Hepatology
Volume20
Issue number11
DOIs
Publication statusPublished - 7 Jun 2023

Bibliographical note

Acknowledgements:
The authors thank the International Network of Oesophageal Atresia (INoEA), The Federation of Oesophageal Atresia and Tracheoesophageal Fistula (EAT), The European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and the European Reference Network for Rare Inherited and Congenital Anomalies (ERNICA) for their support of this initiative. Special thanks go to ESPGHAN for providing funding to enable some of the working group members to attend the consensus voting in person and cast their votes.

Publisher Copyright:
© 2023, Springer Nature Limited.

ASJC Scopus subject areas

  • Hepatology
  • Gastroenterology

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