The experiences of older carers of people with learning disabilities: 'I just carry on with it'

Research output: Contribution to journalArticlepeer-review

Abstract

Purpose
Since people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. The research reported here explores the experiences of older carers of people with LD.
Design/methodology/approach Sixteen interviews with older carers were carried out and analysed qualitatively.
Findings
Three main themes emerged from the data: ‘transition to retirement is a misnomer’; ‘impact of caring role’; and ‘fears for the future’.
Originality
Previous studies have not focused on the specific experiences of ‘older’ carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided.
Original languageEnglish
JournalTizard Learning Disability Review
DOIs
Publication statusPublished - 22 Feb 2021

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