The experiences of older carers of people with learning disabilities: 'I just carry on with it'

Rachel Forrester-Jones

doi:10.1108/TLDR-08-2020-0018

The experiences of older carers of people with learning disabilities: 'I just carry on with it'

Rachel Forrester-Jones

Research output: Contribution to journal › Article › peer-review

2 Citations (SciVal)

204 Downloads (Pure)

Abstract

Purpose: Because people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. This study aims to explore the experiences of older carers of people with LD. Design/methodology/approach: In total, 16 interviews with older carers were carried out and analysed qualitatively. Findings: Three main themes emerged from the data: “transition to retirement is a misnomer”; “impact of caring role”; and “fears for the future”. Originality/value: Previous studies have not focussed on the specific experiences of “older” carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided.

Original language	English
Pages (from-to)	48-57
Number of pages	10
Journal	Tizard Learning Disability Review
Volume	26
Issue number	1
Early online date	22 Feb 2021
DOIs	https://doi.org/10.1108/TLDR-08-2020-0018
Publication status	Published - 30 Apr 2021

Bibliographical note

Rachel Forrester-Jones is Professor of Social Policy and Director of the Centre for the Analysis of Social Policy at the University of Bath

Keywords

Adult social care
Carer experiences
Future plans
Intellectual disability
Learning disabilities
Older carers

ASJC Scopus subject areas

Phychiatric Mental Health
Social Psychology
Developmental and Educational Psychology
Clinical Psychology
Psychiatry and Mental health

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1108/TLDR-08-2020-0018

R. Forrester-Jones 'I just carry on with it'
Forrester-Jones, R. (2021), "The experiences of older carers of people with learning disabilities: “I just carry on with it”", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2020-0018
Accepted author manuscript, 82.2 KBLicence: CC BY-NC
R._Forrester_Jones_I_just_carry_on_with_it_
Forrester-Jones, R. (2021), "The experiences of older carers of people with learning disabilities: “I just carry on with it”", Tizard Learning Disability Review, Vol. ahead-of-print No. ahead-of-print. https://doi.org/10.1108/TLDR-08-2020-0018
Accepted author manuscript, 313 KBLicence: CC BY-NC

Cite this

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The experiences of older carers of people with learning disabilities: 'I just carry on with it'

Abstract

Bibliographical note

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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Cite this