The experiences of older carers of people with learning disabilities: 'I just carry on with it'

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Purpose: Because people with learning disabilities (LD) are living longer, their family carers are likely to continue their caring role for longer. This study aims to explore the experiences of older carers of people with LD. Design/methodology/approach: In total, 16 interviews with older carers were carried out and analysed qualitatively. Findings: Three main themes emerged from the data: “transition to retirement is a misnomer”; “impact of caring role”; and “fears for the future”. Originality/value: Previous studies have not focussed on the specific experiences of “older” carers and their situation risks going unnoticed. Their experiences should be acknowledged by services and society and meaningful support provided.

Original languageEnglish
Pages (from-to)48-57
Number of pages10
JournalTizard Learning Disability Review
Issue number1
Early online date22 Feb 2021
Publication statusPublished - 30 Apr 2021

Bibliographical note

Rachel Forrester-Jones is Professor of Social Policy and Director of the Centre for the Analysis of Social Policy at the University of Bath


  • Adult social care
  • Carer experiences
  • Future plans
  • Intellectual disability
  • Learning disabilities
  • Older carers

ASJC Scopus subject areas

  • Phychiatric Mental Health
  • Social Psychology
  • Developmental and Educational Psychology
  • Clinical Psychology
  • Psychiatry and Mental health


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