“She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Claire Bates; Michelle McCarthy; Karen Milne Skillman; Nicola Elson; Rachel Forrester-Jones

doi:10.1332/239788220X16081401542782

“She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Claire Bates, Michelle McCarthy, Karen Milne Skillman, Nicola Elson, Rachel Forrester-Jones

University of Kent

Research output: Contribution to journal › Article › peer-review

9 Citations (SciVal)

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Abstract

People with intellectual and developmental disabilities often need support to develop and maintain intimate relationships; however, little is known regarding the role of family carers in this area. Focus groups were conducted with 19 family members to explore the support they provide to people with intellectual and developmental disabilities to find a potential partner and any support they may have to provide to support/develop an existing relationship. Family members provided similar support in this area as support staff, including both practical and emotional support. More needs to be done to support the family members providing this support, such as access to specialist resources and advice, as well as facilitated opportunities to discuss concerns.

Original language	English
Pages (from-to)	489-507
Journal	International Journal of Care and Caring
Volume	5
Issue number	3
Early online date	18 Jan 2021
DOIs	https://doi.org/10.1332/239788220X16081401542782
Publication status	Published - 31 Aug 2021

Funding

This work was supported by NIHR (National Institute for Health Research) School for Social Care Research. This article presents independent research funded by the NIHR School for Social Care Research. The views expressed in this article are those of the authors and not necessarily those of the NIHR School for Social Care Research, Department of Health, NIHR or National Health Service. This work was supported by NIHR (National Institute for Health Research) School for Social Care Research.

Keywords

Love
parents
intellectual disabilities
learning disabilities
relationships

ASJC Scopus subject areas

General Arts and Humanities
General Health Professions

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1332/239788220X16081401542782

Family article Revised 301120 editor revised final.PDF
This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version Bates, C, McCarthy, M, Milne Skillman, K, Elson, N & Forrester-Jones, R 2021, '“She misses the subtilties, I help make the invisible visible”: Parents' role in supporting adults with intellectual disabilities with relationships', International Journal of Care and Caring is available online at: https://doi.org/10.1332/239788220X16081401542782
Accepted author manuscript, 482 KB

Cite this

Bates, C., McCarthy, M., Milne Skillman, K., Elson, N., & Forrester-Jones, R. (2021). “She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships. International Journal of Care and Caring, 5(3), 489-507. https://doi.org/10.1332/239788220X16081401542782

“She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships. / Bates, Claire; McCarthy, Michelle; Milne Skillman, Karen et al.
In: International Journal of Care and Caring, Vol. 5, No. 3, 31.08.2021, p. 489-507.

Research output: Contribution to journal › Article › peer-review

Bates, C, McCarthy, M, Milne Skillman, K, Elson, N & Forrester-Jones, R 2021, '“She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships', International Journal of Care and Caring, vol. 5, no. 3, pp. 489-507. https://doi.org/10.1332/239788220X16081401542782

Bates C, McCarthy M, Milne Skillman K, Elson N, Forrester-Jones R. “She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships. International Journal of Care and Caring. 2021 Aug 31;5(3):489-507. Epub 2021 Jan 18. doi: 10.1332/239788220X16081401542782

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“She misses the subtleties and I have to help - help to make the invisible visible”: Parents' role in supporting adults with intellectual and developmental disabilities with intimate relationships

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

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