Abstract
Introduction: UK austerity policies of the last decade have resulted in
cuts and changes to services for people with IDD, potentially leading to
deficiencies in their social lives. This aspect of a wider study is to provide
empirical evidence regarding the experiences of parents of people with
IDD.
Methods: Utilising a qualitative design, nine parents across three
geographical areas were qualitatively interviewed in depth about how they
felt their own and their son/daughter’s social lives had been affected by
cuts in services.
Results: Findings suggest that the nature of relationships with some
providers and funders has changed from collaborative to combative.
Parents reported feeling too exhausted to support their own or their son/
daughter’s social network. Parents reported not being able to fund their
son/daughter’s social network activities.
Implications: Empirical evidence of the experiences of parents of
people with IDD who experience cuts or loss to services can provide
policy-makers with a better understanding of the importance of social
networks to the lives of people with IDD, thereby influencing future
policy and practice
cuts and changes to services for people with IDD, potentially leading to
deficiencies in their social lives. This aspect of a wider study is to provide
empirical evidence regarding the experiences of parents of people with
IDD.
Methods: Utilising a qualitative design, nine parents across three
geographical areas were qualitatively interviewed in depth about how they
felt their own and their son/daughter’s social lives had been affected by
cuts in services.
Results: Findings suggest that the nature of relationships with some
providers and funders has changed from collaborative to combative.
Parents reported feeling too exhausted to support their own or their son/
daughter’s social network. Parents reported not being able to fund their
son/daughter’s social network activities.
Implications: Empirical evidence of the experiences of parents of
people with IDD who experience cuts or loss to services can provide
policy-makers with a better understanding of the importance of social
networks to the lives of people with IDD, thereby influencing future
policy and practice
Original language | English |
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Pages (from-to) | 740-758 |
Number of pages | 1 |
Journal | Journal of Intellectual Disability Research |
Volume | 63 |
Issue number | 7 |
Early online date | 27 Jun 2019 |
DOIs | |
Publication status | Published - 31 Jul 2019 |
Event | International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSID) World Congress, Glasgow, UK 6-9 Aug 2019: IASSID Future4All - Scottish Event Campus (SEC) Glasgow, Glasgow, UK United Kingdom Duration: 6 Aug 2019 → 9 Aug 2019 http://www.iassidd2019.com |
Keywords
- Parents
- Families
- austerity
- intellectual disabilities
ASJC Scopus subject areas
- General Arts and Humanities