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Measuring eating disorders in Autistic people: a proposal for future research

  • Phaedra Longhurst
  • , Emy Nimbley
  • , Elizabeth H. Evans
  • , Keren MacLennan
  • , Karri Gillespie-Smith
  • , Fiona Duffy
  • Anglia Ruskin University
  • University of Edinburgh
  • Durham University

Research output: Contribution to journal › Comment/debate › peer-review

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Abstract

While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs with autistic people before carefully considering which analytical strategies are used in the Autistic population.
Original languageEnglish
JournalEating Disorders
DOIs
Publication statusPublished - 16 Oct 2024

Funding

EN, KGS, and FD are funded via EDAC, a jointly funded project by UK Research and Innovation (MRC, ESRC, and AHRC), the National Institute for Health and Care Research, and the Medical Research Foundation as part of the New Collaborations to support Eating Disorders Research programme [grant number: MR/X03058X/1].

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