Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting

Willemina Campbell; Laura C Coates; Dafna D Gladman; Jana James; Chris A Lindsay; Roland MacDonald; Anna R Moverley; Alexis Ogdie; Ana-Maria Orbai; Denis O'Sullivan; Andrew Parkinson; Ingrid Steinkoenig; William Tillett; Niti Goel

doi:10.3899/jrheum.160117

Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting

Willemina Campbell, Laura C Coates, Dafna D Gladman, Jana James, Chris A Lindsay, Roland MacDonald, Anna R Moverley, Alexis Ogdie, Ana-Maria Orbai, Denis O'Sullivan, Andrew Parkinson, Ingrid Steinkoenig, William Tillett, Niti Goel

Department of Life Sciences

Research output: Contribution to journal › Article › peer-review

6 Citations (SciVal)

Abstract

Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

Original language	English
Pages (from-to)	970-973
Number of pages	4
Journal	The Journal of Rheumatology
Volume	43
Issue number	5
DOIs	https://doi.org/10.3899/jrheum.160117
Publication status	Published - May 2016

Keywords

Journal Article

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10.3899/jrheum.160117

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Campbell, W., Coates, L. C., Gladman, D. D., James, J., Lindsay, C. A., MacDonald, R., Moverley, A. R., Ogdie, A., Orbai, A.-M., O'Sullivan, D., Parkinson, A., Steinkoenig, I., Tillett, W., & Goel, N. (2016). Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting. The Journal of Rheumatology, 43(5), 970-973. https://doi.org/10.3899/jrheum.160117

Campbell, W, Coates, LC, Gladman, DD, James, J, Lindsay, CA, MacDonald, R, Moverley, AR, Ogdie, A, Orbai, A-M, O'Sullivan, D, Parkinson, A, Steinkoenig, I, Tillett, W & Goel, N 2016, 'Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting', The Journal of Rheumatology, vol. 43, no. 5, pp. 970-973. https://doi.org/10.3899/jrheum.160117

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doi = "10.3899/jrheum.160117",

language = "English",

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AU - Coates, Laura C

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AU - James, Jana

AU - Lindsay, Chris A

AU - MacDonald, Roland

AU - Moverley, Anna R

AU - Ogdie, Alexis

AU - Orbai, Ana-Maria

AU - O'Sullivan, Denis

AU - Parkinson, Andrew

AU - Steinkoenig, Ingrid

AU - Tillett, William

AU - Goel, Niti

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AB - Members of the Group for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) have worked since 2012 to include the patient perspective in their psoriatic arthritis (PsA) research as well as in their annual meetings. Herein, patient research partners (PRP) report the progress made in their experience at these GRAPPA meetings and discuss their perception of the challenges that remain in ensuring that patients have a voice in PsA outcome research.

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JO - The Journal of Rheumatology

JF - The Journal of Rheumatology

IS - 5

ER -

Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting

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Outcome Measures for Randomised Controlled Trials in Psoriatic Arthritis

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Let's Talk about Inclusion: A Report on Patient Research Partner Involvement in the GRAPPA 2015 Annual Meeting

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Outcome Measures for Randomised Controlled Trials in Psoriatic Arthritis

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