How CFS/ME is experienced and perceived by parents and families.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Between 1 to 2% of children and young people will be affected by Chronic Fatigue Syndrome (CFS)/myalgic encephalomyelitis (ME). Published work has demonstrated the significant emotional and financial impact of having a child with CFS/ME on mothers (Missen et al, 2012), and also on the psychological wellbeing and quality of life of siblings (Velleman et al, 2015). We know that young people's representations of their CFS/ME play an important role in coping and outcome (Gray & Rutter, 2007). However, little is known about parental illness perceptions. This study will present descriptive data on parental illness perceptions in a cohort of adolescent CFS/ME patients presenting to specialist CFS/ME services using the Brief Illness Perceptions Questionnaire (BIPQ). Parental illness perceptions will be compared to the adolescents’ own illness perceptions. Parental illness perceptions will be compared between those young people with CFS/ME who have co-morbid depression, and those who do not have depression. Data about the perceived impact on the family will be presented from a qualitative study of young people with CFS/ME who were depressed (N=9).
Original languageEnglish
Title of host publicationSymposium 16: Child and adolescent mental health
Subtitle of host publicationChaired by Monika Parkinson, University of Reading
Publication statusPublished - 26 Jul 2017
EventBABCP Annual Conference 2017: Manchester - University of Manchester, Manchester
Duration: 25 Jul 201728 Jul 2017

Conference

ConferenceBABCP Annual Conference 2017
CityManchester
Period25/07/1728/07/17

Fingerprint

fatigue
parents
illness
adolescent
quality of life
coping
questionnaire

Cite this

Loades, M. (2017). How CFS/ME is experienced and perceived by parents and families. In Symposium 16: Child and adolescent mental health: Chaired by Monika Parkinson, University of Reading

How CFS/ME is experienced and perceived by parents and families. / Loades, Maria.

Symposium 16: Child and adolescent mental health: Chaired by Monika Parkinson, University of Reading. 2017.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Loades, M 2017, How CFS/ME is experienced and perceived by parents and families. in Symposium 16: Child and adolescent mental health: Chaired by Monika Parkinson, University of Reading. BABCP Annual Conference 2017, Manchester, 25/07/17.
Loades M. How CFS/ME is experienced and perceived by parents and families. In Symposium 16: Child and adolescent mental health: Chaired by Monika Parkinson, University of Reading. 2017
Loades, Maria. / How CFS/ME is experienced and perceived by parents and families. Symposium 16: Child and adolescent mental health: Chaired by Monika Parkinson, University of Reading. 2017.
@inproceedings{261f51b6d3014947abc354012b1114e4,
title = "How CFS/ME is experienced and perceived by parents and families.",
abstract = "Between 1 to 2{\%} of children and young people will be affected by Chronic Fatigue Syndrome (CFS)/myalgic encephalomyelitis (ME). Published work has demonstrated the significant emotional and financial impact of having a child with CFS/ME on mothers (Missen et al, 2012), and also on the psychological wellbeing and quality of life of siblings (Velleman et al, 2015). We know that young people's representations of their CFS/ME play an important role in coping and outcome (Gray & Rutter, 2007). However, little is known about parental illness perceptions. This study will present descriptive data on parental illness perceptions in a cohort of adolescent CFS/ME patients presenting to specialist CFS/ME services using the Brief Illness Perceptions Questionnaire (BIPQ). Parental illness perceptions will be compared to the adolescents’ own illness perceptions. Parental illness perceptions will be compared between those young people with CFS/ME who have co-morbid depression, and those who do not have depression. Data about the perceived impact on the family will be presented from a qualitative study of young people with CFS/ME who were depressed (N=9).",
author = "Maria Loades",
year = "2017",
month = "7",
day = "26",
language = "English",
booktitle = "Symposium 16: Child and adolescent mental health",

}

TY - GEN

T1 - How CFS/ME is experienced and perceived by parents and families.

AU - Loades, Maria

PY - 2017/7/26

Y1 - 2017/7/26

N2 - Between 1 to 2% of children and young people will be affected by Chronic Fatigue Syndrome (CFS)/myalgic encephalomyelitis (ME). Published work has demonstrated the significant emotional and financial impact of having a child with CFS/ME on mothers (Missen et al, 2012), and also on the psychological wellbeing and quality of life of siblings (Velleman et al, 2015). We know that young people's representations of their CFS/ME play an important role in coping and outcome (Gray & Rutter, 2007). However, little is known about parental illness perceptions. This study will present descriptive data on parental illness perceptions in a cohort of adolescent CFS/ME patients presenting to specialist CFS/ME services using the Brief Illness Perceptions Questionnaire (BIPQ). Parental illness perceptions will be compared to the adolescents’ own illness perceptions. Parental illness perceptions will be compared between those young people with CFS/ME who have co-morbid depression, and those who do not have depression. Data about the perceived impact on the family will be presented from a qualitative study of young people with CFS/ME who were depressed (N=9).

AB - Between 1 to 2% of children and young people will be affected by Chronic Fatigue Syndrome (CFS)/myalgic encephalomyelitis (ME). Published work has demonstrated the significant emotional and financial impact of having a child with CFS/ME on mothers (Missen et al, 2012), and also on the psychological wellbeing and quality of life of siblings (Velleman et al, 2015). We know that young people's representations of their CFS/ME play an important role in coping and outcome (Gray & Rutter, 2007). However, little is known about parental illness perceptions. This study will present descriptive data on parental illness perceptions in a cohort of adolescent CFS/ME patients presenting to specialist CFS/ME services using the Brief Illness Perceptions Questionnaire (BIPQ). Parental illness perceptions will be compared to the adolescents’ own illness perceptions. Parental illness perceptions will be compared between those young people with CFS/ME who have co-morbid depression, and those who do not have depression. Data about the perceived impact on the family will be presented from a qualitative study of young people with CFS/ME who were depressed (N=9).

UR - file:///C:/Users/cd277/AppData/Local/Microsoft/Windows/Temporary%20Internet%20Files/Content.IE5/8GXRXY7U/Manchester-2017%20Final%20prog.pdf

M3 - Conference contribution

BT - Symposium 16: Child and adolescent mental health

ER -