Forgotten and Forsaken: ongoing impact of COVID-19 on immunocompromised people

Luca Bernardi, Jo Daniels

Research output: Book/ReportOther report

Abstract

Research carried by project leads Dr Luca Bernardi, Senior Lecturer in Politics at the University of Liverpool and Dr Jo Daniels, Senior Lecturer and Clinical Psychologist at the University of Bath, the Forgotten Lives UK patient group and the National Clinical Expert Group, has revealed persistent, negative differences in health, finances, mental health, trust in politics and life satisfaction among Immunocompromised people compared to the general population.
Original languageEnglish
Place of PublicationUk
PublisherUniversity of Liverpool
Publication statusPublished - 6 Dec 2023

Acknowledgements

•This is a collaborative project between the APPG on Vulnerable Groups to Pandemics, Forgotten Lives UK, the University of Liverpool and the University of Bath.

•The work has been carried out by project leads Dr Luca Bernardi, Senior Lecturer in Politics at the University of Liverpool and Dr Jo Daniels, Senior Lecturer and Clinical Psychologist at the University of Bath, the Forgotten Lives UK patient group and the National Clinical Expert Group.

•The National Expert Group for immunocompromised patients represents over 125 clinicians, across 4 nations and 17 medical specialities treating immunocompromised patients.

•The clinical group works in parallel with the APPG-VGP to safeguard and protect this vulnerable group during the pandemic. Immunocompromised patients are at greater risk of severe COVID 19 outcomes than the general population as many of these patients respond poorly to SARS CoV-2 vaccines.

•Forgotten Lives UK (leads of the Forgotten500K campaign) is a patient representative and advocacy group working across the UK and with international patient groups to represent the interests of the immunocompromised vulnerable to COVID and obtain faster access to protective drugs. www.forgottenlives.uk

•Dr Luca Bernardi received funding from a Research England Public Policy Support Fund (PWG10029) to conduct the survey with the general public which was administered by YouGov.

•The mental health scales used in this study are: a short form of the Center for Epidemiological Studies Depression scale, a short form of the State-Trait Anxiety Inventory, a short form of the Perceived Stress Scale, and the World Health Organization-Five Well-Being Index.

•We thank Mark Oakley and Nikola Brigden who were the leads and key representatives of the Forgotten Lives UK Patient group involved in this study.

•We thank the APPG and Tracey Allen for her guidance and input into the report.

•We thank Rita De Nicola for her research and administrative assistance.

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