Finding meaning

HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda

Steve Russell, Faith Martin, Flavia Zalwango, Stella Namukwaya, Ruth Nalugya, Richard Muhumuza, Joseph Katongole, Janet Seeley

Research output: Contribution to journalArticle

14 Citations (Scopus)

Abstract

The health of people living with HIV (PLWH) and the sustained success of antiretroviral therapy (ART) programmes depends on PLWH's motivation and ability to self-manage the condition over the long term, including adherence to drugs on a daily basis. PLWH's self-management of HIV and their wellbeing are likely to be interrelated. Successful self-management sustains wellbeing, and wellbeing is likely to motivate continued self-management. Detailed research is lacking on PLWH's self-management processes on ART in resource-limited settings. This paper presents findings from a study of PLWH's self-management and wellbeing in Wakiso District, Uganda. Thirty-eight PLWH (20 women, 18 men) were purposefully selected at ART facilities run by the government and by The AIDS Support Organisation in and around Entebbe. Two in-depth interviews were completed with each participant over three or four visits. Many were struggling economically, however the recovery of health and hope on ART had enhanced wellbeing and motivated self-management. The majority were managing their condition well across three broad domains of self-management. First, they had mobilised resources, notably through good relationships with health workers. Advice and counselling had helped them to reconceptualise their condition and situation more positively and see hope for the future, motivating their work to self-manage. Many had also developed a new network of support through contacts they had developed at the ART clinic. Second, they had acquired knowledge and skills to manage their health, a useful framework to manage their condition and to live their life. Third, participants were psychologically adjusting to their condition and their new 'self': they saw HIV as a normal disease, were coping with stigma and had regained self-esteem, and were finding meaning in life. Our study demonstrates the centrality of social relationships and other non-medical aspects of wellbeing for self-management which ART programmes might explore further and encourage.

Original languageEnglish
Pages (from-to)e0147896
JournalPLoS ONE
Volume11
Issue number1
DOIs
Publication statusPublished - 2016

Fingerprint

Uganda
Self Care
HIV
therapeutics
Hope
Health
Therapeutics
self-esteem
Aptitude
counseling
health care workers
stigma
Self Concept
Motivation
Counseling
interviews
Acquired Immunodeficiency Syndrome
Organizations
Interviews
Recovery

Cite this

Russell, S., Martin, F., Zalwango, F., Namukwaya, S., Nalugya, R., Muhumuza, R., ... Seeley, J. (2016). Finding meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda. PLoS ONE, 11(1), e0147896. https://doi.org/10.1371/journal.pone.0147896

Finding meaning : HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda. / Russell, Steve; Martin, Faith; Zalwango, Flavia; Namukwaya, Stella; Nalugya, Ruth; Muhumuza, Richard; Katongole, Joseph; Seeley, Janet.

In: PLoS ONE, Vol. 11, No. 1, 2016, p. e0147896.

Research output: Contribution to journalArticle

Russell, S, Martin, F, Zalwango, F, Namukwaya, S, Nalugya, R, Muhumuza, R, Katongole, J & Seeley, J 2016, 'Finding meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda', PLoS ONE, vol. 11, no. 1, pp. e0147896. https://doi.org/10.1371/journal.pone.0147896
Russell, Steve ; Martin, Faith ; Zalwango, Flavia ; Namukwaya, Stella ; Nalugya, Ruth ; Muhumuza, Richard ; Katongole, Joseph ; Seeley, Janet. / Finding meaning : HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda. In: PLoS ONE. 2016 ; Vol. 11, No. 1. pp. e0147896.
@article{40ad7179aba7487e9c13c13be2887660,
title = "Finding meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda",
abstract = "The health of people living with HIV (PLWH) and the sustained success of antiretroviral therapy (ART) programmes depends on PLWH's motivation and ability to self-manage the condition over the long term, including adherence to drugs on a daily basis. PLWH's self-management of HIV and their wellbeing are likely to be interrelated. Successful self-management sustains wellbeing, and wellbeing is likely to motivate continued self-management. Detailed research is lacking on PLWH's self-management processes on ART in resource-limited settings. This paper presents findings from a study of PLWH's self-management and wellbeing in Wakiso District, Uganda. Thirty-eight PLWH (20 women, 18 men) were purposefully selected at ART facilities run by the government and by The AIDS Support Organisation in and around Entebbe. Two in-depth interviews were completed with each participant over three or four visits. Many were struggling economically, however the recovery of health and hope on ART had enhanced wellbeing and motivated self-management. The majority were managing their condition well across three broad domains of self-management. First, they had mobilised resources, notably through good relationships with health workers. Advice and counselling had helped them to reconceptualise their condition and situation more positively and see hope for the future, motivating their work to self-manage. Many had also developed a new network of support through contacts they had developed at the ART clinic. Second, they had acquired knowledge and skills to manage their health, a useful framework to manage their condition and to live their life. Third, participants were psychologically adjusting to their condition and their new 'self': they saw HIV as a normal disease, were coping with stigma and had regained self-esteem, and were finding meaning in life. Our study demonstrates the centrality of social relationships and other non-medical aspects of wellbeing for self-management which ART programmes might explore further and encourage.",
author = "Steve Russell and Faith Martin and Flavia Zalwango and Stella Namukwaya and Ruth Nalugya and Richard Muhumuza and Joseph Katongole and Janet Seeley",
year = "2016",
doi = "10.1371/journal.pone.0147896",
language = "English",
volume = "11",
pages = "e0147896",
journal = "PLoS ONE",
issn = "1932-6203",
publisher = "Public Library of Science (PLOS)",
number = "1",

}

TY - JOUR

T1 - Finding meaning

T2 - HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda

AU - Russell, Steve

AU - Martin, Faith

AU - Zalwango, Flavia

AU - Namukwaya, Stella

AU - Nalugya, Ruth

AU - Muhumuza, Richard

AU - Katongole, Joseph

AU - Seeley, Janet

PY - 2016

Y1 - 2016

N2 - The health of people living with HIV (PLWH) and the sustained success of antiretroviral therapy (ART) programmes depends on PLWH's motivation and ability to self-manage the condition over the long term, including adherence to drugs on a daily basis. PLWH's self-management of HIV and their wellbeing are likely to be interrelated. Successful self-management sustains wellbeing, and wellbeing is likely to motivate continued self-management. Detailed research is lacking on PLWH's self-management processes on ART in resource-limited settings. This paper presents findings from a study of PLWH's self-management and wellbeing in Wakiso District, Uganda. Thirty-eight PLWH (20 women, 18 men) were purposefully selected at ART facilities run by the government and by The AIDS Support Organisation in and around Entebbe. Two in-depth interviews were completed with each participant over three or four visits. Many were struggling economically, however the recovery of health and hope on ART had enhanced wellbeing and motivated self-management. The majority were managing their condition well across three broad domains of self-management. First, they had mobilised resources, notably through good relationships with health workers. Advice and counselling had helped them to reconceptualise their condition and situation more positively and see hope for the future, motivating their work to self-manage. Many had also developed a new network of support through contacts they had developed at the ART clinic. Second, they had acquired knowledge and skills to manage their health, a useful framework to manage their condition and to live their life. Third, participants were psychologically adjusting to their condition and their new 'self': they saw HIV as a normal disease, were coping with stigma and had regained self-esteem, and were finding meaning in life. Our study demonstrates the centrality of social relationships and other non-medical aspects of wellbeing for self-management which ART programmes might explore further and encourage.

AB - The health of people living with HIV (PLWH) and the sustained success of antiretroviral therapy (ART) programmes depends on PLWH's motivation and ability to self-manage the condition over the long term, including adherence to drugs on a daily basis. PLWH's self-management of HIV and their wellbeing are likely to be interrelated. Successful self-management sustains wellbeing, and wellbeing is likely to motivate continued self-management. Detailed research is lacking on PLWH's self-management processes on ART in resource-limited settings. This paper presents findings from a study of PLWH's self-management and wellbeing in Wakiso District, Uganda. Thirty-eight PLWH (20 women, 18 men) were purposefully selected at ART facilities run by the government and by The AIDS Support Organisation in and around Entebbe. Two in-depth interviews were completed with each participant over three or four visits. Many were struggling economically, however the recovery of health and hope on ART had enhanced wellbeing and motivated self-management. The majority were managing their condition well across three broad domains of self-management. First, they had mobilised resources, notably through good relationships with health workers. Advice and counselling had helped them to reconceptualise their condition and situation more positively and see hope for the future, motivating their work to self-manage. Many had also developed a new network of support through contacts they had developed at the ART clinic. Second, they had acquired knowledge and skills to manage their health, a useful framework to manage their condition and to live their life. Third, participants were psychologically adjusting to their condition and their new 'self': they saw HIV as a normal disease, were coping with stigma and had regained self-esteem, and were finding meaning in life. Our study demonstrates the centrality of social relationships and other non-medical aspects of wellbeing for self-management which ART programmes might explore further and encourage.

UR - http://dx.doi.org/10.1371/journal.pone.0147896

UR - http://dx.doi.org/10.1371/journal.pone.0147896

U2 - 10.1371/journal.pone.0147896

DO - 10.1371/journal.pone.0147896

M3 - Article

VL - 11

SP - e0147896

JO - PLoS ONE

JF - PLoS ONE

SN - 1932-6203

IS - 1

ER -