Exploring the illness representations of people with psoriatic arthritis

A secondary analysis of focus group data

On behalf of the PROMPT Study Group

Research output: Contribution to journalArticle

Abstract

Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which determine their emotional and behavioural response to the condition. The CSM includes five beliefs: identity, consequence, cause, time line and control. These are important determinants of outcomes and have been shown to influence adherence to medication. Methods. A secondary analysis of eight focus groups held across five hospital sites and including 41 participants was undertaken. Participants were sampled for a range of phenotypes and domains of disease activity: men = 20 and women = 21; mean (S.D.): age = 58 (11.4) years; disease duration = 9 (8.3) years; and HAQ = 1 (0.7). Results. The analysis provided evidence to support the existence of the five illness beliefs among patients with PsA and evidence that these representations affected the way patients engaged with their condition. The results showed that many participants experienced high levels of uncertainty in relationship to the illness representation. The role of external social and environmental factors was also shown to influence participants' illness representations and the way they made sense of their PsA. Conclusion. This research highlights a new theme of uncertainty within illness representations and how this impacts on the way in which people living with PsA manage their condition. A greater understanding of the uncertainty that patients might have about their condition and its treatment could provide clinicians with an opportunity to address misinformed illness representations.

Original languageEnglish
Pages (from-to)1-7
Number of pages7
JournalRheumatology Advances in Practice
Volume2
Issue number2
DOIs
Publication statusPublished - 1 Jul 2018

Keywords

  • Behaviour
  • Common-sense model
  • Illness representation
  • Patient attitude to health
  • Psychology and social phenomena
  • Rheumatic diseases
  • Spondylarthropathies

ASJC Scopus subject areas

  • Rheumatology

Cite this

Exploring the illness representations of people with psoriatic arthritis : A secondary analysis of focus group data. / On behalf of the PROMPT Study Group.

In: Rheumatology Advances in Practice, Vol. 2, No. 2, 01.07.2018, p. 1-7.

Research output: Contribution to journalArticle

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abstract = "Background. PsA is an inflammatory arthritis associated with psoriasis, affecting the joints and connective tissue. According to the common-sense model (CSM), patients develop illness beliefs when faced with new symptoms, which determine their emotional and behavioural response to the condition. The CSM includes five beliefs: identity, consequence, cause, time line and control. These are important determinants of outcomes and have been shown to influence adherence to medication. Methods. A secondary analysis of eight focus groups held across five hospital sites and including 41 participants was undertaken. Participants were sampled for a range of phenotypes and domains of disease activity: men = 20 and women = 21; mean (S.D.): age = 58 (11.4) years; disease duration = 9 (8.3) years; and HAQ = 1 (0.7). Results. The analysis provided evidence to support the existence of the five illness beliefs among patients with PsA and evidence that these representations affected the way patients engaged with their condition. The results showed that many participants experienced high levels of uncertainty in relationship to the illness representation. The role of external social and environmental factors was also shown to influence participants' illness representations and the way they made sense of their PsA. Conclusion. This research highlights a new theme of uncertainty within illness representations and how this impacts on the way in which people living with PsA manage their condition. A greater understanding of the uncertainty that patients might have about their condition and its treatment could provide clinicians with an opportunity to address misinformed illness representations.",
keywords = "Behaviour, Common-sense model, Illness representation, Patient attitude to health, Psychology and social phenomena, Rheumatic diseases, Spondylarthropathies",
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AU - Smith, Catherine

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AU - James, Jana

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