Exploring the Future Role of Self-Tracking Data in the Rheumatology Clinic

William Hue, Simon Jones, Raj Sengupta

Research output: Chapter or section in a book/report/conference proceedingChapter in a published conference proceeding

2 Citations (SciVal)


Despite enormous growth in the use of consumer self-tracking devices, the data that many patients collect about their condition is seldom integrated into conversations that take place in the clinic. In this paper we explore the potential roles that self-tracking data could play during clinical interactions between patients with Ankylosing Spondylitis (a chronic rheumatic disease) and their clinicians. We develop a model of the data-centric activities that currently take place within the rheumatology clinic, using field observations, and to discuss how self-tracking data may contribute to each of these activities. We also interview two consultant rheumatologists regarding the opportunities and challenges that the use of self-tracking data may bring. We propose four different roles for self-tracking data in the clinic and discuss possible directions for designing to support these roles.
Original languageEnglish
Title of host publicationHealthcare of the Future
EditorsS. Bignens, T. Burkle, M. Lehmann, K. Denecke, E. Zetz, J. Holm, M. Sariyar
Place of PublicationBiel/Bienne, Switzerland
PublisherIOS Press
Number of pages6
ISBN (Electronic)978-1-61499-961-4
ISBN (Print)9781614999607
Publication statusPublished - 2019

Publication series

NameStudies in Health Technology and Informatics


  • Ankylosing spondylitis
  • Chronic conditions
  • Personal Informatics
  • Self-tracking

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management


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