Abstract
People living with Complex Regional Pain Syndrome (CRPS) experience frustration with the lack of knowledge and understanding of CRPS as a pain condition. In this case study, we explain how we worked with a group of people living with CRPS with the intention of helping them create a Wikipedia page about CRPS written by them, for people like them. We share what happened when our participants did not engage. We show you how we found a solution and, in so doing, show how you can be creative when facing research challenges, yet still meet the essence of the original goal of the research.
| Original language | English |
|---|---|
| Journal | SAGE Research Methods Cases |
| DOIs | |
| Publication status | Published - 2018 |
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