EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases

Aurélie Najm, Elena Nikiphorou, Marie Kostine, Christophe Richez, John D. Pauling, Axel Finckh, Valentin Ritschl, Yeliz Prior, Petra Balážová, Simon Stones, Zoltan Szekanecz, Annamaria Iagnocco, Sofia Ramiro, Francisca Sivera, Maxime Dougados, Loreto Carmona, Gerd Burmester, DIeter Wiek, Laure Gossec, Francis Berenbaum

Research output: Contribution to journalArticle

Abstract

Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

Original languageEnglish
Article numbere001014
Pages (from-to)1-7
Number of pages7
JournalRMD Open
Volume5
Issue number2
Early online date13 Sep 2019
DOIs
Publication statusPublished - 13 Sep 2019

Keywords

  • EULAR
  • mobile health applications
  • Points to consider
  • rheumatic and musculoskeletal diseases
  • self-management

ASJC Scopus subject areas

  • Immunology and Allergy
  • Rheumatology
  • Immunology

Cite this

EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases. / Najm, Aurélie; Nikiphorou, Elena; Kostine, Marie; Richez, Christophe; Pauling, John D.; Finckh, Axel; Ritschl, Valentin; Prior, Yeliz; Balážová, Petra; Stones, Simon; Szekanecz, Zoltan; Iagnocco, Annamaria; Ramiro, Sofia; Sivera, Francisca; Dougados, Maxime; Carmona, Loreto; Burmester, Gerd; Wiek, DIeter; Gossec, Laure; Berenbaum, Francis.

In: RMD Open, Vol. 5, No. 2, e001014, 13.09.2019, p. 1-7.

Research output: Contribution to journalArticle

Najm, A, Nikiphorou, E, Kostine, M, Richez, C, Pauling, JD, Finckh, A, Ritschl, V, Prior, Y, Balážová, P, Stones, S, Szekanecz, Z, Iagnocco, A, Ramiro, S, Sivera, F, Dougados, M, Carmona, L, Burmester, G, Wiek, DI, Gossec, L & Berenbaum, F 2019, 'EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases', RMD Open, vol. 5, no. 2, e001014, pp. 1-7. https://doi.org/10.1136/rmdopen-2019-001014
Najm, Aurélie ; Nikiphorou, Elena ; Kostine, Marie ; Richez, Christophe ; Pauling, John D. ; Finckh, Axel ; Ritschl, Valentin ; Prior, Yeliz ; Balážová, Petra ; Stones, Simon ; Szekanecz, Zoltan ; Iagnocco, Annamaria ; Ramiro, Sofia ; Sivera, Francisca ; Dougados, Maxime ; Carmona, Loreto ; Burmester, Gerd ; Wiek, DIeter ; Gossec, Laure ; Berenbaum, Francis. / EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases. In: RMD Open. 2019 ; Vol. 5, No. 2. pp. 1-7.
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abstract = "Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.",
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T1 - EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases

AU - Najm, Aurélie

AU - Nikiphorou, Elena

AU - Kostine, Marie

AU - Richez, Christophe

AU - Pauling, John D.

AU - Finckh, Axel

AU - Ritschl, Valentin

AU - Prior, Yeliz

AU - Balážová, Petra

AU - Stones, Simon

AU - Szekanecz, Zoltan

AU - Iagnocco, Annamaria

AU - Ramiro, Sofia

AU - Sivera, Francisca

AU - Dougados, Maxime

AU - Carmona, Loreto

AU - Burmester, Gerd

AU - Wiek, DIeter

AU - Gossec, Laure

AU - Berenbaum, Francis

N1 - © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

PY - 2019/9/13

Y1 - 2019/9/13

N2 - Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

AB - Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

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