EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases

Aurélie Najm; Elena Nikiphorou; Marie Kostine; Christophe Richez; John D. Pauling; Axel Finckh; Valentin Ritschl; Yeliz Prior; Petra Balážová; Simon Stones; Zoltan Szekanecz; Annamaria Iagnocco; Sofia Ramiro; Francisca Sivera; Maxime Dougados; Loreto Carmona; Gerd Burmester; DIeter Wiek; Laure Gossec; Francis Berenbaum

doi:10.1136/rmdopen-2019-001014

EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases

Aurélie Najm, Elena Nikiphorou, Marie Kostine, Christophe Richez, John D. Pauling, Axel Finckh, Valentin Ritschl, Yeliz Prior, Petra Balážová, Simon Stones, Zoltan Szekanecz, Annamaria Iagnocco, Sofia Ramiro, Francisca Sivera, Maxime Dougados, Loreto Carmona, Gerd Burmester, DIeter Wiek, Laure Gossec, Francis Berenbaum

Department of Life Sciences

Research output: Contribution to journal › Article › peer-review

73 Citations (SciVal)

Abstract

Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

Original language	English
Article number	e001014
Pages (from-to)	1-7
Number of pages	7
Journal	RMD Open
Volume	5
Issue number	2
Early online date	13 Sept 2019
DOIs	https://doi.org/10.1136/rmdopen-2019-001014
Publication status	Published - 13 Sept 2019

Bibliographical note

Funding

1rheumatology Department, University Hospital centre nantes, nantes, France 2inSerM UMr 1238, Universite de nantes ecole Doctorale Biologie-Sante, nantes, France 3Department of inflammation Biology, King's college london academic, london, UK 4rheumatology Department, centre Hospitalier Universitaire de Bordeaux groupe hospitalier Pellegrin, Bordeaux, France 5royal national Hospital for rheumatic Diseases, royal United Hospital Bath nHS trust, Bath, UK 6Department of Pharmacy and Pharmacology, University of Bath, Bath, UK 7Division of rheumatology, University Hospital of geneva, geneva, Switzerland 8Section for Outcomes research, center for Medical Statistics, informatics, and intelligent Systems, Medical University of Vienna, Wien, austria 9Division of Occupational therapy, University of applied Sciences, FH campus Wien, Wien, austria 10centre for Health Sciences research, University of Salford, Salford, UK 11Mid cheshire nHS Foundation trust Hospitals, crewe, UK 12eUlar Young Pare, Zurich, Switzerland 13Slovak league against rheumatism, Piestany, Slovakia 14School of Healthcare, University of leeds, leeds, UK 15Department of rheumatology, University of Debrecen, Faculty of Medicine, Debrecen, Hungary 16academic rheumatology centre, Università degli Studi di torino, torino, italy 17Department of rheumatology, Zuyderland Medical center, Heerlen, the netherlands 18Department of rheumatology, leiden University Medical center, leiden, the netherlands 19rheumatology, Hospital general Universitario de elda, elda, Spain 20Hopital cochin, rheumatology, Université Paris Descartes, Paris, France 21instituto de Salud Musculoesquelética, Madrid, Spain 22rheumatology, charité - University Medicine Berlin, Berlin, germany 23Deutsche rheuma-liga, Bonn, germany 24institut Pierre louis d'epidémiologie et de Santé Publique, inSerM UMr S1136, Sorbonne Universite, Paris, France 25aPHP, rheumatology Department, Hopital Universitaire Pitie Salpetriere, Paris, France 26rheumatology Department, aP-HP, Hopital Saint-antoine, Paris, France 27inSerM crSa, Sorbonne Université, Paris, France

Keywords

EULAR
mobile health applications
Points to consider
rheumatic and musculoskeletal diseases
self-management

ASJC Scopus subject areas

Immunology and Allergy
Rheumatology
Immunology

Access to Document

10.1136/rmdopen-2019-001014Licence: CC BY-NC

Cite this

Najm, A., Nikiphorou, E., Kostine, M., Richez, C., Pauling, J. D., Finckh, A., Ritschl, V., Prior, Y., Balážová, P., Stones, S., Szekanecz, Z., Iagnocco, A., Ramiro, S., Sivera, F., Dougados, M., Carmona, L., Burmester, G., Wiek, DI., Gossec, L., & Berenbaum, F. (2019). EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases. RMD Open, 5(2), 1-7. Article e001014. https://doi.org/10.1136/rmdopen-2019-001014

EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases. / Najm, Aurélie; Nikiphorou, Elena; Kostine, Marie et al.
In: RMD Open, Vol. 5, No. 2, e001014, 13.09.2019, p. 1-7.

Research output: Contribution to journal › Article › peer-review

Najm, A, Nikiphorou, E, Kostine, M, Richez, C, Pauling, JD, Finckh, A, Ritschl, V, Prior, Y, Balážová, P, Stones, S, Szekanecz, Z, Iagnocco, A, Ramiro, S, Sivera, F, Dougados, M, Carmona, L, Burmester, G, Wiek, DI, Gossec, L & Berenbaum, F 2019, 'EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases', RMD Open, vol. 5, no. 2, e001014, pp. 1-7. https://doi.org/10.1136/rmdopen-2019-001014

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abstract = "Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.",

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AU - Najm, Aurélie

AU - Nikiphorou, Elena

AU - Kostine, Marie

AU - Richez, Christophe

AU - Pauling, John D.

AU - Finckh, Axel

AU - Ritschl, Valentin

AU - Prior, Yeliz

AU - Balážová, Petra

AU - Stones, Simon

AU - Szekanecz, Zoltan

AU - Iagnocco, Annamaria

AU - Ramiro, Sofia

AU - Sivera, Francisca

AU - Dougados, Maxime

AU - Carmona, Loreto

AU - Burmester, Gerd

AU - Wiek, DIeter

AU - Gossec, Laure

AU - Berenbaum, Francis

PY - 2019/9/13

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N2 - Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

AB - Background Mobile health applications (apps) are available to enable people with rheumatic and musculoskeletal diseases (RMDs) to better self-manage their health. However, guidance on the development and evaluation of such apps is lacking. Objectives The objective of this EULAR task force was to establish points to consider (PtC) for the development, evaluation and implementation of apps for self-management of RMDs. Methods A systematic literature review of app content and development strategies was conducted, followed by patient focus group and an online survey. Based on this information and along with task force expert opinion, PtC were formulated in a face-to-face meeting by a multidisciplinary task force panel of experts, including two patient research partners. The level of agreement among the panel in regard to each PtC was established by anonymous online voting. Results Three overarching principles and 10 PtC were formulated. Three PtC are related to patient safety, considered as a critical issue by the panel. Three are related to relevance of the content and functionalities. The requirement for transparency around app development and funding sources, along with involvement of relevant health professionals, were also raised. Ease of app access across ages and abilities was highlighted, in addition to considering the cost benefit of apps from the outset. The level of agreement was from 8.8 to 9.9 out of 10. Conclusion These EULAR PtC provide guidance on important aspects that should be considered for the development, evaluation and implementation of existing and new apps.

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EULAR points to consider for the development, evaluation and implementation of mobile health applications aiding self-management in people living with rheumatic and musculoskeletal diseases

Abstract

Bibliographical note

Funding

Keywords

ASJC Scopus subject areas

Access to Document

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