Development of a pain and discomfort module for use with the WHOQOL-100

V L Mason, S M Skevington, M Osborn

Research output: Contribution to journalArticle

18 Citations (Scopus)

Abstract

Clinicians and researchers have become increasingly interested in the impact of chronic pain (CP) on quality of life (QoL). This report describes the qualitative stages of developing a pain and discomfort module for persons with CP to be used with the UK World Health Organisation generic measure of quality of life (WHOQOL). The aims were to investigate patients' perceptions of CP and its effect on QoL, and to generate items to be used in the development of a module appended to the UK WHOQOL-100. At the first stage ( study 1), six focus groups of patients were invited to discuss how living with pain and discomfort affected QoL. At the second stage ( study 2), an international web survey was conducted with English-speaking respondents. Ten new facets of QoL were identified by the focus groups: flare-ups, pain relief, anger and frustration, vulnerability/fear/worry, uncertainty, loss/loneliness/feeling alone, positive strategies, communication, guilt and burdening others, and relationship with health care providers. The web-survey confirmed and validated these new facets. Although the WHOQOL-100 is a reliable and valid measure of QoL for use in CP, this study shows that additional areas must be assessed when measuring the impact of CP on QoL.
Original languageEnglish
Pages (from-to)1139-1152
Number of pages14
JournalQuality of Life Research
Volume13
Issue number6
DOIs
Publication statusPublished - 2004

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Quality of Life
Pain
Chronic Pain
Focus Groups
Loneliness
Frustration
Guilt
Anger
Health Personnel
Uncertainty
Fear
Emotions
Communication
Research Personnel
Surveys and Questionnaires

Cite this

Development of a pain and discomfort module for use with the WHOQOL-100. / Mason, V L; Skevington, S M; Osborn, M.

In: Quality of Life Research, Vol. 13, No. 6, 2004, p. 1139-1152.

Research output: Contribution to journalArticle

Mason, V L ; Skevington, S M ; Osborn, M. / Development of a pain and discomfort module for use with the WHOQOL-100. In: Quality of Life Research. 2004 ; Vol. 13, No. 6. pp. 1139-1152.
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