Coping with chronic complex regional pain syndrome: advice from patients for patients

Karen Rodham, C McCabe, M Pilkington, L Regan

Research output: Contribution to journalArticle

8 Citations (Scopus)

Abstract

Objective: To explore what advice people currently living with chronic complex regional pain syndrome would offer to another person coming to terms with a diagnosis of chronic complex regional pain syndrome.

Methods: Semi-structured interviews with 21 adults (5 male) living with chronic complex regional pain syndrome who had completed a complex regional pain syndrome rehabilitation programme were conducted.

Results: Effectively self-managing complex regional pain syndrome required individuals to play an active role. This could only be achieved if they felt they had sufficient control. Means of attaining control involved attaining a level of acceptance, becoming well-informed and accessing the right kind of support. The advice offered by patients for patients largely reflected that offered by healthcare professionals. One area where there was a conflict concerned sleep hygiene.

Conclusions: Our study provides support both for the argument put forward by Redman that without appropriate preparation and support, self-management is ineffective, and that by Skuladottir and Hallsdottir that the main challenge of the chronic pain trajectory is that ofretaining a sense of control. The clinical implications of this are discussed.

Original languageEnglish
Pages (from-to)29-42
Number of pages14
JournalChronic Illness
Volume9
Issue number1
Early online date31 May 2012
DOIs
Publication statusPublished - Mar 2013

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Complex Regional Pain Syndromes
Self Care
Chronic Pain
Rehabilitation
Interviews
Delivery of Health Care

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Coping with chronic complex regional pain syndrome: advice from patients for patients. / Rodham, Karen; McCabe, C; Pilkington, M; Regan, L.

In: Chronic Illness, Vol. 9, No. 1, 03.2013, p. 29-42.

Research output: Contribution to journalArticle

Rodham, Karen ; McCabe, C ; Pilkington, M ; Regan, L. / Coping with chronic complex regional pain syndrome: advice from patients for patients. In: Chronic Illness. 2013 ; Vol. 9, No. 1. pp. 29-42.
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