Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent

Communication Expert Group

Research output: Contribution to journalReview article

Abstract

Many adults diagnosed with a life-threatening condition have children living at home; they and their partners face the dual challenge of coping with the diagnosis while trying to maintain a parenting role. Parents are often uncertain about how, when, and what to tell their children about the condition, and are fearful of the effect on their family. There is evidence that children are often aware that something is seriously wrong and want honest information. Health-care professionals have a key role in supporting and guiding parents and caregivers to communicate with their children about the diagnosis. However, the practical and emotional challenges of communicating with families are compounded by a scarcity of evidence-based guidelines. This Review considers children's awareness and understanding of their parents' condition, the effect of communication around parental life-threatening condition on their wellbeing, factors that influence communication, and the challenges to achieving effective communication. Children's and parents' preferences about communication are outlined. An expert workshop was convened to generate principles for health-care professionals, intended as practical guidance in the current absence of empirically derived guidelines.

Original languageEnglish
Pages (from-to)1164-1176
Number of pages13
JournalThe Lancet
Volume393
Issue number10176
Early online date14 Mar 2019
DOIs
Publication statusPublished - 16 Mar 2019

Keywords

  • Adaptation, Psychological/physiology
  • Adolescent
  • Adult
  • Awareness
  • Child
  • Child, Preschool
  • Communication
  • Decision Making
  • Emotions
  • Health Personnel/ethics
  • Humans
  • Parent-Child Relations
  • Parents/psychology
  • Patient Preference/psychology
  • Terminally Ill/psychology

Cite this

Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent. / Communication Expert Group.

In: The Lancet, Vol. 393, No. 10176, 16.03.2019, p. 1164-1176.

Research output: Contribution to journalReview article

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title = "Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent",
abstract = "Many adults diagnosed with a life-threatening condition have children living at home; they and their partners face the dual challenge of coping with the diagnosis while trying to maintain a parenting role. Parents are often uncertain about how, when, and what to tell their children about the condition, and are fearful of the effect on their family. There is evidence that children are often aware that something is seriously wrong and want honest information. Health-care professionals have a key role in supporting and guiding parents and caregivers to communicate with their children about the diagnosis. However, the practical and emotional challenges of communicating with families are compounded by a scarcity of evidence-based guidelines. This Review considers children's awareness and understanding of their parents' condition, the effect of communication around parental life-threatening condition on their wellbeing, factors that influence communication, and the challenges to achieving effective communication. Children's and parents' preferences about communication are outlined. An expert workshop was convened to generate principles for health-care professionals, intended as practical guidance in the current absence of empirically derived guidelines.",
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author = "{Communication Expert Group} and Louise Dalton and Elizabeth Rapa and Sue Ziebland and Tamsen Rochat and Brenda Kelly and Lucy Hanington and Ruth Bland and Aisha Yousafzai and Alan Stein and Theresa Betancourt and Myra Bluebond-Langner and Catherine D'Souza and Mina Fazel and Kim Fredman-Stein and Emily Harrop and Daniel Hochhauser and Barbara Kolucki and Lowney, {Aoife C.} and Elena Netsi and Linda Richter",
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