Collecting disability data from parents

Jill Porter, Harry Daniels, Anthony Feiler, Jan Georgeson

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

This article describes the development and national trial of a methodology for collecting disability data directly from parents, enabling schools and local authorities to meet their obligations under the Disability Discrimination Act (DDA; 2005) to promote equality of opportunity for all children. It illustrates the complexities around collecting this information and also highlights the dangers of assuming that special educational needs (SENs) equate to disability. The parental survey revealed children with medical and mental health needs, but no SENs, who were unknown to schools. It also revealed children with a recorded SEN whose parents did not consider that they had a disability in line with the DDA definition. It identified a number of children whose disability leads to absences from school, making them vulnerable to underachievement. These findings highlight the importance of having appropriate tools with which to collect these data and developing procedures to support their effective use. We also draw attention to the contextual nature of children's difficulties and the importance of retaining and respecting the place of subjective information. This is central to adopting a definition of disability that hinges on experience or impact.
Original languageEnglish
Pages (from-to)427-443
Number of pages17
JournalResearch Papers in Education
Volume26
Issue number4
Early online date11 Nov 2009
DOIs
Publication statusPublished - Dec 2009

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parents
disability
special educational needs
school
number of children
equality
obligation
discrimination
mental health
act
methodology
experience

Cite this

Porter, J., Daniels, H., Feiler, A., & Georgeson, J. (2009). Collecting disability data from parents. Research Papers in Education, 26(4), 427-443. https://doi.org/10.1080/02671520903281625

Collecting disability data from parents. / Porter, Jill; Daniels, Harry; Feiler, Anthony; Georgeson, Jan.

In: Research Papers in Education, Vol. 26, No. 4, 12.2009, p. 427-443.

Research output: Contribution to journalArticle

Porter, J, Daniels, H, Feiler, A & Georgeson, J 2009, 'Collecting disability data from parents', Research Papers in Education, vol. 26, no. 4, pp. 427-443. https://doi.org/10.1080/02671520903281625
Porter J, Daniels H, Feiler A, Georgeson J. Collecting disability data from parents. Research Papers in Education. 2009 Dec;26(4):427-443. https://doi.org/10.1080/02671520903281625
Porter, Jill ; Daniels, Harry ; Feiler, Anthony ; Georgeson, Jan. / Collecting disability data from parents. In: Research Papers in Education. 2009 ; Vol. 26, No. 4. pp. 427-443.
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