Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales

Elizabeth Reilly; Randa Alshakh; Celia Beynon; Matthew Cates; Dhivya Das; Shuja Majeed; Ahsan Memon; Patrick O’Beirn; James Ritchie; John D Pauling

doi:10.1093/rheumatology/kez106.002

Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales

Elizabeth Reilly, Randa Alshakh, Celia Beynon, Matthew Cates, Dhivya Das, Shuja Majeed, Ahsan Memon, Patrick O’Beirn, James Ritchie, John D Pauling

Department of Life Sciences

Research output: Contribution to journal › Meeting abstract › peer-review

Abstract

Background: The devolved nations have differing commissioning arrangements surrounding high-cost drugs. The 2015 NHS England Clinical Commissioning Policy on the use of sildenafil and bosentan for the management of systemic sclerosis-related digital ulcers (SSc-DU) in England aligns with guidelines by the UK Scleroderma Study Group and BSR. We undertook a multicentre service evaluation project across the South West (SW) UK and Wales to review real world management of SSc-DU, before and following the 2015 guidance.Methods: The project was conducted by rheumatology trainees within the South West Audit Network (SWAN). Anonymised data on DU burden and management before and after 2015 was collected retrospectively from case notes of SSc patients (pre-dating 2015), between September and December 2017. Patients treated with vasodilators for pulmonary arterial hypertension were excluded.

Original language	English
Article number	003
Number of pages	1
Journal	Rheumatology
Volume	58
Issue number	Supplement_3
Early online date	12 Apr 2018
DOIs	https://doi.org/10.1093/rheumatology/kez106.002
Publication status	Published - 30 Apr 2018

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Reilly, E., Alshakh, R., Beynon, C., Cates, M., Das, D., Majeed, S., Memon, A., O’Beirn, P., Ritchie, J., & Pauling, J. D. (2018). Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales. Rheumatology, 58(Supplement_3), Article 003. https://doi.org/10.1093/rheumatology/kez106.002

Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales. / Reilly, Elizabeth; Alshakh, Randa; Beynon, Celia et al.
In: Rheumatology, Vol. 58, No. Supplement_3, 003, 30.04.2018.

Research output: Contribution to journal › Meeting abstract › peer-review

Reilly, E, Alshakh, R, Beynon, C, Cates, M, Das, D, Majeed, S, Memon, A, O’Beirn, P, Ritchie, J & Pauling, JD 2018, 'Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales', Rheumatology, vol. 58, no. Supplement_3, 003. https://doi.org/10.1093/rheumatology/kez106.002

Reilly E, Alshakh R, Beynon C, Cates M, Das D, Majeed S et al. Changes in the management of systemic sclerosis-related digital ulcer disease between 2015-2017 across devolved nations of the United Kingdom: a multi-centre service evaluation project across South West England and Wales. Rheumatology. 2018 Apr 30;58(Supplement_3):003. Epub 2018 Apr 12. doi: 10.1093/rheumatology/kez106.002

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abstract = "Background: The devolved nations have differing commissioning arrangements surrounding high-cost drugs. The 2015 NHS England Clinical Commissioning Policy on the use of sildenafil and bosentan for the management of systemic sclerosis-related digital ulcers (SSc-DU) in England aligns with guidelines by the UK Scleroderma Study Group and BSR. We undertook a multicentre service evaluation project across the South West (SW) UK and Wales to review real world management of SSc-DU, before and following the 2015 guidance.Methods: The project was conducted by rheumatology trainees within the South West Audit Network (SWAN). Anonymised data on DU burden and management before and after 2015 was collected retrospectively from case notes of SSc patients (pre-dating 2015), between September and December 2017. Patients treated with vasodilators for pulmonary arterial hypertension were excluded.",

author = "Elizabeth Reilly and Randa Alshakh and Celia Beynon and Matthew Cates and Dhivya Das and Shuja Majeed and Ahsan Memon and Patrick O{\textquoteright}Beirn and James Ritchie and Pauling, {John D}",

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AU - Reilly, Elizabeth

AU - Alshakh, Randa

AU - Beynon, Celia

AU - Cates, Matthew

AU - Das, Dhivya

AU - Majeed, Shuja

AU - Memon, Ahsan

AU - O’Beirn, Patrick

AU - Ritchie, James

AU - Pauling, John D

PY - 2018/4/30

Y1 - 2018/4/30

N2 - Background: The devolved nations have differing commissioning arrangements surrounding high-cost drugs. The 2015 NHS England Clinical Commissioning Policy on the use of sildenafil and bosentan for the management of systemic sclerosis-related digital ulcers (SSc-DU) in England aligns with guidelines by the UK Scleroderma Study Group and BSR. We undertook a multicentre service evaluation project across the South West (SW) UK and Wales to review real world management of SSc-DU, before and following the 2015 guidance.Methods: The project was conducted by rheumatology trainees within the South West Audit Network (SWAN). Anonymised data on DU burden and management before and after 2015 was collected retrospectively from case notes of SSc patients (pre-dating 2015), between September and December 2017. Patients treated with vasodilators for pulmonary arterial hypertension were excluded.

AB - Background: The devolved nations have differing commissioning arrangements surrounding high-cost drugs. The 2015 NHS England Clinical Commissioning Policy on the use of sildenafil and bosentan for the management of systemic sclerosis-related digital ulcers (SSc-DU) in England aligns with guidelines by the UK Scleroderma Study Group and BSR. We undertook a multicentre service evaluation project across the South West (SW) UK and Wales to review real world management of SSc-DU, before and following the 2015 guidance.Methods: The project was conducted by rheumatology trainees within the South West Audit Network (SWAN). Anonymised data on DU burden and management before and after 2015 was collected retrospectively from case notes of SSc patients (pre-dating 2015), between September and December 2017. Patients treated with vasodilators for pulmonary arterial hypertension were excluded.

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DO - 10.1093/rheumatology/kez106.002

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