Case study: Ethical guidance for pediatric e-health research using examples from pain research with adolescents

E.M. Henderson, E.F. Law, T.M. Palermo, C. Eccleston

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

Objective: The Internet is a frequently used platform for research in pediatric and health psychology. However, there is little pragmatic guidance as to ethical best practice of this research. The absence of guidance is particularly prominent for online research with children. Our objective is to outline ethical issues in e-health research with children and adolescents using two exemplar studies in pediatric pain research. Methods: The first study is an asynchronous message board discussion amongst teenagers with pain who are frequent internet users.The second study is a web-based behavioral intervention for the management of adolescent pain. Results: Each exemplar study is discussed in the context of specific ethical considerations related to recruitment, informed consent and debriefing, privacy and confidentiality, and participant safety. Ethical issues regarding the evaluation of online psychological interventions are also discussed. Conclusions: Guidance on optimal ethical practice in e-health research is summarized. .
Original languageEnglish
Pages (from-to)1116-1126
Number of pages11
JournalJournal of Pediatric Psychology
Volume37
Issue number10
DOIs
Publication statusPublished - Nov 2012

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