Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting

Maarten De Wit; Willemina Campbell; Ana Maria Orbai; William Tillett; Oliver Fitzgerald; Dafna D. Gladman; Chris A. Lindsay; Neil J. McHugh; Philip J. Mease; Denis O'Sullivan; Ingrid Steinkoenig; Glenn Windisch; Niti Goel

doi:10.3899/jrheum.150123

Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting

Maarten De Wit, Willemina Campbell, Ana Maria Orbai, William Tillett, Oliver Fitzgerald, Dafna D. Gladman, Chris A. Lindsay, Neil J. McHugh, Philip J. Mease, Denis O'Sullivan, Ingrid Steinkoenig, Glenn Windisch, Niti Goel

Research output: Contribution to journal › Article › peer-review

11 Citations (SciVal)

Abstract

for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA's vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA's working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.

Original language	English
Pages (from-to)	1021-1026
Number of pages	6
Journal	Journal of Rheumatology
Volume	42
Issue number	6
DOIs	https://doi.org/10.3899/jrheum.150123
Publication status	Published - 1 Jun 2015

Keywords

GRAPPA
PATIENT PARTICIPATION
PATIENT RESEARCH PARTNERS
RESEARCH
RHEUMATOLOGY

ASJC Scopus subject areas

Immunology and Allergy
Rheumatology
Immunology

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10.3899/jrheum.150123

Cite this

De Wit, M., Campbell, W., Orbai, A. M., Tillett, W., Fitzgerald, O., Gladman, D. D., Lindsay, C. A., McHugh, N. J., Mease, P. J., O'Sullivan, D., Steinkoenig, I., Windisch, G., & Goel, N. (2015). Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting. Journal of Rheumatology, 42(6), 1021-1026. https://doi.org/10.3899/jrheum.150123

De Wit, M, Campbell, W, Orbai, AM, Tillett, W, Fitzgerald, O, Gladman, DD, Lindsay, CA, McHugh, NJ, Mease, PJ, O'Sullivan, D, Steinkoenig, I, Windisch, G & Goel, N 2015, 'Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting', Journal of Rheumatology, vol. 42, no. 6, pp. 1021-1026. https://doi.org/10.3899/jrheum.150123

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abstract = "for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA's vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA's working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.",

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author = "{De Wit}, Maarten and Willemina Campbell and Orbai, {Ana Maria} and William Tillett and Oliver Fitzgerald and Gladman, {Dafna D.} and Lindsay, {Chris A.} and McHugh, {Neil J.} and Mease, {Philip J.} and Denis O'Sullivan and Ingrid Steinkoenig and Glenn Windisch and Niti Goel",

year = "2015",

month = jun,

day = "1",

doi = "10.3899/jrheum.150123",

language = "English",

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AU - Orbai, Ana Maria

AU - Tillett, William

AU - Fitzgerald, Oliver

AU - Gladman, Dafna D.

AU - Lindsay, Chris A.

AU - McHugh, Neil J.

AU - Mease, Philip J.

AU - O'Sullivan, Denis

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AU - Windisch, Glenn

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AB - for Research and Assessment of Psoriasis and Psoriatic Arthritis (GRAPPA) recently engaged patients as collaborative partners in psoriatic arthritis (PsA) research. We summarize Building Bridges, a session held at the GRAPPA 2014 annual meeting, where interactive dialogue was encouraged between all participants regarding GRAPPA's vision for patient research partner (PRP) involvement, including the mutual understanding of the roles and responsibilities of PRP and researchers in GRAPPA's working groups, meetings, and governance arrangements. We conclude that involving PRP in GRAPPA projects is pivotal to optimizing incorporation of the patient perspective in psoriasis and PsA research.

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KW - PATIENT RESEARCH PARTNERS

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Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting

Abstract

Keywords

ASJC Scopus subject areas

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Outcome Measures for Randomised Controlled Trials in Psoriatic Arthritis

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Building bridges between researchers and patient research partners: A report from the grappa 2014 annual meeting

Abstract

Keywords

ASJC Scopus subject areas

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Projects

Outcome Measures for Randomised Controlled Trials in Psoriatic Arthritis

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