This chapter briefly outlines Western funeral practices, then describes how funeral participation is important to successful grieving and meaning-making of others’ death. It examines research on funeral attendance and barriers, involving adults with intellectual disability. COVID-19 restricted funeral participation for all, reflecting how people with disabilities have often been excluded from these rituals long before the pandemic. The experience of exclusion and of participation is conveyed in several individual stories. The significance of emotional, social and spiritual supports linked to funerals (and the impact of being denied these) is discussed so that people with disabilities can be better supported to engage with and meaningfully participate in others’ funerals, and have a say in their own funeral arrangements if they wish to. A list of resources is provided.
|Title of host publication||End of life and people with intellectual and developmental disability: Contemporary issues, challenges, experiences and practice|
|Editors||Roger Standcliffe, Michele Y. Wiese, Philip McCallion, Mary McCarron|
|Publication status||Published - 2022|
- Intellectual Disability