A partnership approach to transplant preparation: Involving children, young people and their families

This article aims to describe patient- and parent/carer-reported experience of the renal transplant preparation programme (RTPP) offered at Bristol Royal Hospital for Children (BRHC). The Department of Health stipulates that the effective involvement of patients and their carers in developing, commissioning, delivering and evaluating UK healthcare services is essential to ensure improvements in standards of care that reflect the preferences and needs of patients, their families and their carers. The National Service Framework for Renal Services emphasises that provision of high-quality information in partnership with children, young people and their carers is key to enabling informed decision-making. This sentiment is echoed by the call to action in the editorial of the Spring 2012 issue of this journal.