A meta-ethnography of how children and young people with chronic non-cancer pain and their families experience and understand their condition, pain services, and treatments (Protocol)

Emma France, Jane Noyes, Liz Forbat, Dr Isabelle Uny, Abbie Jordan, Line Caes, Ruth Turley

Research output: Contribution to journalArticlepeer-review

1 Citation (SciVal)

Abstract

Objectives: This is a protocol for a Cochrane Review (qualitative). 

The objectives are as follows: 

To synthesise qualitative studies that examine the experiences and perceptions of children with chronic pain and their families regarding chronic pain, treatments, and services to inform the design and delivery of health and social care services, interventions, and future research. 

To explore whether our review findings help to explain the results of Cochrane Reviews of intervention effects of treatments for children's chronic pain. 

To determine if programme theories and outcomes of interventions match children and their families’ views of desired treatments and outcomes. 

To use our findings to help inform the selection and design of patient-reported outcome measures for use in chronic pain studies and interventions and care provision to children and their families. 

Review questions: How do children with chronic non-cancer pain and their families conceptualise chronic pain? How do children with chronic non-cancer pain and their families live with chronic pain? What do children with chronic non-cancer pain and their families think of how health and social care services respond to and manage their own/their child’s chronic pain? What do children with chronic non-cancer pain and their families conceptualise as ‘good’ chronic pain management, and what do they want to achieve from chronic pain management interventions and services?

Original languageEnglish
Article numberCD014873
JournalCochrane Database of Systematic Reviews
Volume2022
Issue number7
DOIs
Publication statusPublished - 18 Jul 2022

Bibliographical note

Funding Information:
This project is funded by the National Institute of Health Research (NIHR) Health Services and Delivery Research (HS&DR) Programme (reference NIHR128671) in the United Kingdom. National Institute for Health Research (NIHR), UK

Funding Information:
We would like to thank the children with chronic pain and parents and professionals and Dr Mayara Silveira Bianchim of the University of Stirling who contributed to the development of this review. Cochrane Review Group funding acknowledgement: this project was funded by the National Institute for Health Research (NIHR) via Cochrane Infrastructure funding to the Cochrane Pain, Palliative and Supportive Care Review Group (PaPaS). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care. The Cochrane Pain, Palliative and Supportive Care Review Group (PaPaS) supported the authors in the development of this review. The following people conducted the editorial process for this article. Sign-off Editor (final editorial decision): Dr Neil O'Connell, Brunel University London Managing Editor (selected peer reviewers, collated peer-reviewer comments, provided editorial guidance to authors, edited the article): Anna Erskine, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Assistant Managing Editor (conducted editorial checks and supported the editorial team): Kerry Harding, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Contact Editor (editorial guidance): Kate Seers, Warwick Research in Nursing, Warwick Medical School, University of Warwick, UK Information Specialist (preparing the search strategy and running searches): Joanne Abbott, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Lisa Winer (copy-editing and production): Cochrane Copy Edit Support Peer reviewers (provided comments and made editorial suggestions): Samana Ali, MBBS, FRCPC, FAAP (clinical reviewer), Emma Fisher, University of Bath (clinical review), Mia Koponen, University of Aberdeen (clinical review), Manasi Murthy Mittinty, PhD, MD, Lecturer, University of Sydney (clinical review), Kristin Osika (consumer reviewer) Sign-off Editor (final editorial decision): Dr Neil O'Connell, Brunel University London Managing Editor (selected peer reviewers, collated peer-reviewer comments, provided editorial guidance to authors, edited the article): Anna Erskine, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Assistant Managing Editor (conducted editorial checks and supported the editorial team): Kerry Harding, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Contact Editor (editorial guidance): Kate Seers, Warwick Research in Nursing, Warwick Medical School, University of Warwick, UK Information Specialist (preparing the search strategy and running searches): Joanne Abbott, Oxford University Hospitals (OUH) NHS Foundation Trust, Oxford, UK Lisa Winer (copy-editing and production): Cochrane Copy Edit Support Peer reviewers (provided comments and made editorial suggestions): Samana Ali, MBBS, FRCPC, FAAP (clinical reviewer), Emma Fisher, University of Bath (clinical review), Mia Koponen, University of Aberdeen (clinical review), Manasi Murthy Mittinty, PhD, MD, Lecturer, University of Sydney (clinical review), Kristin Osika (consumer reviewer)

Funding Information:
Cochrane Review Group funding acknowledgement: this project was funded by the National Institute for Health Research (NIHR) via Cochrane Infrastructure funding to the Cochrane Pain, Palliative and Supportive Care Review Group (PaPaS). The views expressed are those of the author(s) and not necessarily those of the NIHR or the Department of Health and Social Care.

ASJC Scopus subject areas

  • Pharmacology (medical)

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