A case study: the costs of residential care for people with intellectual disability and dementia

Background People with intellectual disabilities have a shorter life expectancy but health care improvements mean that they are living longer, with the associated health difficulties. Research into ways of supporting people with intellectual disabilities who are ageing and need end of life care is short supply, and few services are provided.
Method This research is a single case study that included observations, interviews with standardised questionnaires and focus groups for staff. This Discussion Paper focuses on estimating the comprehensive costs of a specialised residential facility using a standard, well-established approach.
Results At £1,422 per resident week (2013 prices) our estimated cost for supporting residents at Leesdown House are likely to be slightly higher that the placement fees paid by local health trusts and social services departments. Any difference would allow the service to build up a small ‘cushion’ of funds on which to rely during periods of lower occupancy. Additional services and volunteer costs account for a further £55 per resident week.
Conclusion Cost information alone should never drive care policy. However, the resources absorbed by Leesdown House generated positive results for residents’ quality of life and opportunities to make choices for themselves. This service may provide a solution to the gap in specialist service provision.