Developing a self-help toolkit for supporting wellbeing in parents of children with Epidermolysis Bullosa (EB).

Epidermolysis Bullosa (EB) is a group of blistering skin conditions, characterised by pain and itching. Caring for a child with EB can be associated with stress, linked with the condition itself, and application of treatments. Guidelines produced by DEBRA International highlight the need for parental support, and this has been reiterated during our contact with clinicians and parent members of DEBRA UK. However, there is a lack of accessible psychological support available. The aim of this research is to produce and test a self-help toolkit to reduce parental stress.